Research Completed

Published Studies

Year Publication Categories
2021
Transition readiness curve in youth with IBD

Summary

Transition readiness is the set of knowledge and skills that young people need in order to manage their health as adults. The Transition Readiness Assessment Questionnaire (also called the TRAQ) is one measure of transition readiness.

We knew that transition readiness goes up as people get older, but we did not have a clear sense of the average transition readiness scores for people of different ages. This made it hard to tell what score we should expect for a particular person at a particular age.

To address this, we used data from IBD Partners. Participants in both IBD Partners and IBD Partners Kids & Teens between the ages of 12 and 21 chose to complete the TRAQ when they did surveys for IBD Partners. We took the results for anyone who had completed the TRAQ and looked at how the scores changed over time.

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Full Published Manuscript

Keywords
Pediatric;

Pediatric
2020
Transition Readiness Not Associated With Measures of Health in Youth With IBD

Summary

Our objective was to describe the transition readiness (transitioning from child- to adult-centered healthcare) of children and young adults with inflammatory bowel disease (IBD) and study its relationships with age, sex, IBD activity, and measures of physical, psychological, and social health.

Participants in IBD Partners and IBD Partners Kids & Teens answered questions about demographics, IBD activity, transition readiness, health-related quality of life, and more.

In children and young adults with IBD, transition readiness was related to older age and female sex, but not IBD activity and other measures of physical, psychological, and social health.


Full Scientific Manuscript

Keywords
transition readiness; depression; anxiety; social health; quality of life; inflammatory bowel disease;

Lifestyle,
Health Maintenance